11.8.21 Trach Floor 13

Should we be in the depths of despair or in renewed hope tonight? It depends on your sources. The GI team came by late this afternoon and after discussing the unhappy results of our recent attempts with clamping Aimee’s NG suction, we agreed that we would try a completely different tact. We would attempt giving her a tiny hourly amount of pedialyte into her small intestine and see if it spurs her stomach on to deal with its own secretions. 

A couple of hours after this conversation, the resident came in saying that she had spoken with GI. They told her that there is nothing more that they can do. Either this is Aimee’s new baseline or we continue to wait in hope that there will eventually be improvement. 

So… I’m not sure, but I think we will chose to maintain some hope. The team will round back with GI and we will attempt a tiny 1-5ml an hour feed into her intestines starting tomorrow morning. There is a possibility that it will work. At least it is something different to try and maybe… perhaps… there will be magic. 

Aimee had her beautiful hair washed today. She is more comfortable today since we haven’t done any clamping at all. We are working on getting an exception made so that we can start her back on CBD oil tonight or tomorrow morning in the hopes that she will have more peace in her body.