8.29.23 Update

Aimee has been on the fentanyl pain patch for just over a week and it has been such a success so far. It is giving her a more even dose of medicine continuously versus our previous method and we are using occasional breakthrough doses of morphine when she needs it. 

Overall she is more stable again. The intestines have woken back up thanks to a respiratory virus she picked up on top of a trach infection. Both challenging and oddly helpful. As her GI doctor said last week, Aimee’s intestines react unpredictably to every event in her body and brain. Her bloodwork is keeping our doctors on their toes. The rollercoaster continues. We have a good plan in place for the next wave and better tools in place. Assuming she repeats the same issue! Many times I have heard and seen for myself that Aimee does things her own way. She is not following any medical textbook and never really has. 

And she is happy to be here. Not much else matters when she smiles. 





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