11.4.21 Trach Floor 9

Guest blogger #6

Well… We actually got the CT scan done today as was scheduled yesterday. After all of the scrambling around the last couple of days, I had my doubts on whether it would actually happen. Although, it was scheduled at 9 AM and didn’t happen until 1 PM. The results of the scan showed no more obstruction or clear inflammation in Aimee’s small intestine. There is currently no issue happening in Aimee’s bowels. The GI consulting doctors came in and excitedly pronounced to me that they had good news and stated that everything looked good on the CT scan. However, this leaves us without an answer. I was hoping that they would find something that they could actually fix that was wrong. 

I know it seems weird that I would actually want there to be something wrong with Aimee, but with a test showing us more details of the underlying problem, then we would have a potentially fixable something and maybe this wouldn’t happen again. Part of our fear going forward is that we have no real confirmed reason why her bowels stopped working in the first place. We might come out of this not knowing if this is something that is going to reoccur and put us back here in the same place again. Here’s hoping. 

SO, starting tomorrow we will start clamping the NG tube again with the hope to slowly work towards testing her ability to take on fluids into her small intestine after she is okay with no more NG suction. Hang on people, this is going to be a slow and long process. Honestly, we knew this was going to take awhile. 

Part of the reason why we agreed to take on the Trach was because we knew the gut stuff was going take awhile. We have completed our first week of training, but our last training day is scheduled for December 27th. I think the bright spot for today was after our training, Caleb and Elliot got to come up to the room to see Aimee! This took quite a bit of coordination and included some Hospital policy exceptions, but I think it was really good for the boys to see Aimee.