11.2.21 Trach Floor 7

One month back here today. 

It has been a struggle for us this last several days with depression and sadness. Many tears. We will not all be together for Thanksgiving, for birthday parties, for Christmas. I have been here hand making little animal families as stocking stuffers for the kids. Without realizing it, I was holding onto the hope that we would all be together then. 

When I told the kids that it would still be a couple of months, Caleb burst into sobs. He wept and yelled for several minutes about how unfair it is to be apart. He is worried that she will spend her birthday in the hospital and had hoped she would be home for his in December. Having to be separated as a family is one of the most difficult parts of this process. 

Ed had an emotional conversation with one of our well known MCC providers today. She feels that this seems to be a change point for Aimee, that they will be seeing more of us. How ironic when we finally got ourselves set up with a team and a goal to keep her home. We want Aimee to not be in pain, we want her to be home, and we want her to be herself. We want to hear her laugh, to laugh with her, during family movie night. We want to have her siblings piled around her listening to an audiobook. At the same moment, we are so so grateful for all of those experiences that we have had together. So blessed that Aimee got to come home during family camp to very happily be with cousins. So so thankful that we went on a family getaway for a few days this Spring. We must not take for granted the happy moments that we have had as we continue to prayerfully hope for more. 
















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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)

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