Papa bear’s blog post
Well, this papa bear has one mission … getting his family back under one roof. My roof. My conversation with GI and the need to get the ball rolling for TPN at home has spurred on the MCC team to put together a Care Conference. We have a couple weeks of TPN training and prior to that we need to place a central line, but before we can do that we need to know what type of central line we need. Seems simple, but the people who write the prescription for the TPN get to make that decision. You guessed it GI.
My calendar says that tomorrow is December. Sorry for all of you who didn’t want to hear that. 😉November is over. It sounds to me like we need about 3 weeks to accomplish the set up of TPN. That means I want the decision to be made by the end of the week. I have requested that this conference happen this week so papa bear can be in the room. More to follow ….
One of the things that will need to change when we go home on TPN is the ramping up of the rate in order to give Aimee (and us) a break from the TPN. The goal would be to have a break of about 8 hours off TPN. The team is going to start this process now with about 4 hours off. Aimee’s body has to adjust to not being feed 24/7 and there is an adjustment period for that to happen. The other thing that needs to happen is the transition of the rest of Aimee’s meds from IV to enteral, specifically her seizures meds. No plan in place for this yet, but the team is working on it. This is what I’m talking about people! Foresight. Don’t just kick the can! Maybe GI can hear me 🤣.
We did have another visitor from the Orthopedic department (Dr White, surgeon, came on Thanksgiving). Today was Brenda! She is the Nurse Practitioner that came to our house on Christmas and New Years Day to change the wound vac 4 years ago. She has taken a real liking to Aimee and our family too. She loves to tell stories about Caleb and Elliot walking her dogs in the snow and about Walter being a baby in the hospital. She offered to come to any Care Conference if we needed someone to advocate on our behalf to help us accomplish our goals.
I also got a morning grin from Aimee. I cherish these moments.
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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