3.28.14 She Knew

An inconsistency has occurred.

Always Aimee keeps us second guessing. Since my last post the ping pong game of sickness, of issues, has volleyed back and forth numerous times. Moments pass where it seems we are lost. Then the game shifts and we feel sure and confident.

Today, we took Aimee down for her first set of lessons in 9 months. A preview to the week of therapy lessons her T-shirt sales is funding. 9 months. We expected regression. Don't we all lose progress over such a break? This past 6 months have been dark and difficult. Personally, I have been under the weight of post pardum depression and the stress of sick season. Aimee has been in a fog. More seizures, I think. Or maybe it's... I could run through a list of alternatives. 

This week, starting Monday, Aimee is doing things I haven't seen her do since... Probably since a month after her last lesson. She has been raising her right arm straight and across her body. She has been participating in sitting up. She has been aware. She has been vocal, responding to my comments to her. She has been frequently looking in the direction of a speaker. I almost felt like yesterday she looked me in the eye for a moment. And, she has slept through the night 3 out of the last 4 nights. 

My only conclusion is that she knew. She knew she was going to have lessons this week and she is returning to that state of mind. Is that possible? You may be quick to say, "of course!". I assure you... I will not be. I love Aimee. I do my best to believe for her. But my heart does not understand. How to process this inconsistency. It wants to ignore it for its own protection. Yet, there is a whisper saying it again.

She knew. 

3.16.14 Aimee Love Update

Fundraiser update for you:

Today marks a special milestone. You have spread the word and enough shirts have been sold to make the minimum quota! Yippee! We have 2 more weeks from today to be sure everyone gets to be a part. There is no limit to the number of shirts available, so please continue to tell your friends or purchase for yourself if you have not yet been able to do so. We have until end of day on March 30th. 

We are privileged to care for Aimee, but that care does come at a high cost. Thank you to each of you for supporting us in prayer, in kind words, in sacrificing your hard earned money, in making us food, and all the other ways you have loved us in our journey. You are a key part of Aimee's team. And soon you'll be wearing the shirt to prove it! ;) 

Click here to visit fundraising page.

3.12.14 Show Your Aimee Love!

Excited to announce this brand new fundraiser for Aimee!! 
Please check it out and share with your friends. 

The shirt says:
Happy girls are the prettiest girls. -Audrey Hepburn-
Team Aimee Love

These super cute shirts are $20 for an adult or a youth size. $9 from every shirt you purchase for yourself or as a gift goes for Aimee's life changing therapy and special medical equipment needs. Plus, you get to show off your love and support for Aimee! Please consider buying a shirt for your daughter or other women in your life as well. 

Check it out:
Aimee's Medical Equipment and Therapy Fund at bonfirefunds.com

How it works: In order to have a successful fundraiser we have to sell a minimum of 50 shirts by March 30th. If you purchase a shirt you will not be charged until we have a commitment for that minimum. If we don't reach that goal, you will not be charged and will not receive a shirt. However, if we do reach this goal, than in mid-April you will be ready to show off your love for Aimee. :)

3.10.14 My Sissy

Hi. 

Caleb here.

You might remember me from this post about becoming the younger older brother or this one about me being welcomed into the family. 

Momma probably thinks she is sharing all the important things about Sissy with you, but I feel I must interrupt. She is missing key points. There are just some things Momma doesn't know. But, you ask the younger brother... That's right, I know the real important stuff.

• First thing, her name is Sissy. Sometimes people causally call her 'Aimee', which is fine. Just not correct.

• One of the first, most essential lessons Sissy taught me was how to snuggle.

• More recently, she has been giving me an excuse to play iPad. I am happy to play Sissy's favorite apps all day long with her. I even let her listen to my music and sometimes we watch a show together. She really enjoys watching scout, pooh bear, and peep. Pretty cool since those are my favorite shows.

• Every 5 minutes, I ask Momma, "Sissy iPad?". One would hate to miss the chance if perhaps Momma changed her mind. Of course, she is such a softy when I play iPad with Sissy, so the chances are coming pretty often. 

• One task Sissy assigned to me recently is to climb up on her bed in the morning and sit on her to wake her up. 

• Momma might ask me to give Sissy space, but she must be blind to the really big smiles when I climb all over her.

• We have this great joke between us. Obviously, I can't betray the secret here, but you should hear Sissy laugh. It makes me giggly too.

• Another task Sissy has for me is to stand on the runner of her chair and ride along while Momma pushes us. I try to complete this as often as I can.

• When Sissy is well enough to go to school, I am always very careful to check out the classroom and other students before I leave her there. As her brother, I need to make sure she is hanging out with the right crowd. And kids these days... let me tell you! 

• The other night while Momma was getting Sissy ready for bed, I threw a bunch of balloons up on her bed. Pretty much covered her. That's why we're such good friends. I knew she would like it. 

Don't worry. I have begun to relay these essential things to Elliot already. 

I may have to interrupt this blog again in the future as I learn more. 

Over and out,

Caleb

Ps. Sissy has been sick again this week. My parents are doing all those weird things to her again. I try to tell Momma not to do them. Sometimes, to protect her, when no one is looking I try to do my own treatments. Poor Sissy. If only they didn't keep such a close eye on her so I would get more of a chance!