Both lumens of Aimee’s picc clogged so she spent half of the day off of her TPN and without medications. There was much drama with this difficulty, arguments about x-rays, hourly blood sugar checks, ect. Some of the drama came simply from many departments being short staffed and covering too many patients. Aside from being behind on hydration, Aimee is up and running again this evening finally.
Pulmonary stopped by to discuss some bloodwork that required changes to her vent respiratory rate. We also talked about the findings from Aimee’s trach safe that showed broncomalacia. There was discussion of doing a sedated scope of her lungs, but pulmonary was able to watch the recording from the trach scope and felt that they were able to see enough data for now. What it does tell us is that Aimee has weakened cartilage in her lungs that tends toward being floppy, trapping secretions and making it more tiring to breath.
We have been waiting for a few days for Aimee to have an MRE of her small intestine. Really, we have been waiting for closer to 2 weeks, but only a few days since the team agreed to do it. Yesterday we were told it would be that day. Today we were initially told it would be tomorrow. Then we were told there were no openings until the 15th. Then we were told that due to her spinal hardware, the MRE would not provide a good image quality. In the end, Aimee will be having a different CT scan called an enterography, which will hopefully provide more details about the inflammation and partial blockage. This scan should be done tomorrow morning… hopefully.
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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