The care conference has been scheduled for tomorrow with Aimee’s primary GI doctor to be in attendance. My hope is that it will be clear what Aimee’s needs are and what has to happen in order to meet them. The biggest struggle besides getting the TPN situation figured out is how to remove the NG suction. We have increased two medications to hopefully increase her tolerance and make it possible to remove the NG tube.
So one of the requirements to go home is the transition from IV meds to Enteral meds. It was brought to the attention of the team that this is a 5 week process for one of her seizure meds and we have not yet begun. This is extremely frustrating, because we had asked them to look into this last week and they did nothing with it. I feel our stay getting longer and that hurts my heart. I just want us to be back together.
We had visits today from Ortho, Palliative Care, and Pulmonary. No big things from these visits. Mostly them checking in to see how things are going and if there’s something they can do to help. Pulmonary is wondering about how sleepy she is, wondering if she is actually sleeping while she sleeps. He was going to round back the sleep pulmonologist that we meet with in the ICU.
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