10.27.21 MCC Trach Vent Floor!

I came back down this afternoon and had a peaceful afternoon transitioning care, discussing this week with Ed. Then this evening, the ICU team released Aimee to the Medically Complex Care team on the Trach Vent Floor! She just got settled in her new room (forest 3.307). This is a huge step forward after nearly 4 weeks in the ICU. 

While we are so thrilled with this step forward where we get to be participants in her care again, we are concerned about her gut function. The respiratory situation is a matter of time and training, so that will proceed over the next few weeks. The gut… we still have hope that she will return to her ability to be fed via j-tube, but are concerned about the difficulty that she has been having without NG suctioning and the partial obstruction. If she can return to her previous function, will she be frequently dealing with blockages? Will she be able to get back to comfortable digestion without distention and vomiting? If she doesn’t return to function, she will have to go home on TPN. We are not yet in the place where we have to consider these options, but has started to come up in discussion with different team members. We are still waiting to hear back from the general surgery/GI discussions on what steps to take next. 

In happy news, I enjoyed a few days at home doing “normal” life, school, snuggles, diapers, milking, and laundry. It was good, though so hard to be separate. I never want to leave home and I never want to leave Aimee here. 💔