10.13.21 ICU 21

After this morning’s scope they determined that a different type of trach is needed. This one is slipping up and forward easily which is pressing against the trachea and triggering increased neuro symptoms. The hope is to keep her sedated enough to make it to Friday and change it out. If she can’t make it, they would have to change it early causing trauma to the area. So far the change in meds has kept her much more sedated and we have only seen whispers this afternoon of distress.

We did speak with Neurology and if we see the same activity continuing again they will bring in electrodes and hook her up quickly to EEG to decide if it is seizures. 

Today we also met with Ortho to get a better fitting leg brace. They discussed her osteopenia condition and the possibility that her GI issues this year may have caused her to absorb less nutrition. When we met with GI, they recommended connecting with Endocrine about therapy for better bone density. We need to figure out something to ensure that this does not become a new pattern. And honestly, figure out how to help her bone to heal while she is also still critically ill. 

I also had an appointment today with Urology. They would like Aimee to be seen by the surgery clinic for botox injections to allow to void urine without so many catheters. These serious repeated urinary tract infections have now culminated in sepsis, pancreatitis, and small intestine shut down. This cascade of events has definitely changed my perspective on using the botox. I had previously been avoiding it as it must be repeated under sedation every few months. 

No wonder Aimee is overwhelmed.