The episodes that we were seeing the night before became more and more frequent throughout yesterday. It started only when we would do positioning, then anytime we had to suction or touch her, then it became constant. Despite many extra boluses of anxiety and pain meds, she spent hours last night spasming and shaking. She had consults all over the place, x-rays, blood draws, many different meds, and finally had an added dose of diazapam with rescue dose of atovan. She seemed to be neurologically storming. Her eyes were going crazy, her whole body was shaking, she was grimacing, and pulling her head back. Her sats were intermittently bad and she was on high oxygen and had diminished lung sounds. It was all happening at once and we are so grateful to be here where things can happen quickly when they need to happen quickly.
Neurology gave her an increased, loading dose during the night of the IV seizure med with plans for her regular daily doses to be increased based on the blood levels taken last night. The thought is to also add a drip of atovan along with the dilaudid drip and the precedex drip.
In other news, all of that movement seems to have adjusted the position of the trach, which is making it difficult to get air in and out of her lungs. Early this morning the Otolaryngology doctor checked over her from the outside and it seems that the position of the trach may have shifted against the back wall of her trachea. In a few minutes they will be doing a scope here at bedside. Getting a small amount of anesthesia ready.
General surgery just left after repacking her abdominal wound. It looks clean and healthy to me, but is disconcerting to have an open wound hanging around. They keep trying to stop the suction of her stomach and it ends up becoming distended within a few hours. Planning to try turning off suction again this afternoon to see if she can handle it.
This is hard. Aimee is being so brave, but her body is going through a lot. The process has not been as smooth as everyone thought it would be. We are praying that she stays strong, that she is able to have healing rest with the extra medications on board.
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