10.24.21 ICU 33

Mystery guest blogger ;)

Not a great day today. Had some episodes of throwing up this morning. Her belly was pretty distended this morning until her NG tube was moved back to suction.  Following the episodes this morning have a few hours of pretty distressed including shaking hands and high heart rate. Needed a few different doses of medication to break the cycle and calm her back down.

The ICU team is in continued talks with the general surgery and G.I. teams. We are waiting to hear back from G.I. after reviewing the CT scan done on Friday night. Biggest question seems to be what is causing the narrowing of the small intestine. ICU team is taking some stool samples to rule out some possibilities while we wait for GI’s response. 

Today Rosa went home to be with the other four kids and take care of the home duties. It is always so difficult to leave Aimee here at the hospital especially when things aren’t moving in an upward direction and seeing her in distress. Rosa does such a fantastic job here taking care of Aimee, but she needs rest and recovery time. She has basically been here more than 3 weeks straight with only a brief 12 hour break. 

I wanted to thank all of you whether known or unknown for loving on my family during this time. Each one of us has felt the love and compassion that you have for us and for Aimee. It is truly remarkable to see how far reaching the love and care for our family is. We are so appreciative of our village that helps us care for Aimee.