1.1.22 Trach Floor 66

Tomorrow is 3 months here straight. When we left home to bring Aimee to the Emergency Dept, we told the kids that we hoped to bring her back home in a couple days. This feels out of control. We can hold on for a time, but everything is a mess after this long. All the normal little things that make up regular life: well child checks and dentist appointments, children’s clothes, house cleaning, animal shelter cleaning, end of the fall garden care, body condition, healthy habits, marriage connection, financial record keeping, piles of mail… it is just too long and it is all out of control. I am scared as we finally come to an end. What will we have to face when we bring Aimee home? We have to figure out how to take care of Aimee in new ways and also all the rest. I feel low and blue and depressed. I know that we are doing what is right and good. Yet also, this journey is such a very heavy weight, such a survivor road. We must go on. Praying that when we get there, through this part of our journey, that there will be solid relationship left between Ed and I, also between us and our children. 

Aimee has a cold. We are doing extra treatments and care. It is so amazing to have these great tools with the trach, the vent, the amazing cough assist. Hoping to help her quickly through this.