1.14.22 Trach Floor 79

Grief. Feeling it today. 

Thank you for loving us, being with us. For sitting with us in your way. 


Apparently after I came to an agreement with the anesthesia team about doing the central line placement, the surgeon pushed back asking that we wait longer to reduce risks. Finally there has been an agreement of waiting 14 days without any additional oxygen needs. Yet, they still haven’t scheduled it. Thus, we don’t have an exact day, but no earlier than the 24th. And this is the big puzzle piece right now on which the rest of the puzzle is waiting. Frustrating that a cold can cause such a cascade of challenge in Aimee’s life. 

Our handyman went to work yesterday (thank you to my sister-in-law Karla for watching our kids). He created this wonderful built-in for Aimee’s room to hold her locked medicine cabinet, her refrigerator for her meds/TPN, and a little desk space. I really love my handyman. Looking forward to spending time while I’m home next week sorting through Aimee’s paperwork and organizing her space in preparation for her homecoming. 




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