She had a little extra time today with the trial iPad holder. We really should find her a good one to use at home. It was wonderful to have it easily in her field of vision and of touch.
She was able to facetime with Louisa today too. Louisa always insists on saying “hi” to Aimee every time I talk with her.
We are working with the case manager on the suction situation, the TPN situation, and the orders for discharge. There are a lot of people working really hard to get us home, but there are also so many pieces to get into place. Still no central line placement scheduled. :( It feels very discouraging and miserable right now.
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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