Ed’s Post
About the same day for Aimee today as yesterday. Still needing oxygen and additional respiratory therapy. We did meet briefly with Pulmonary and have added in another steroid inhaler that we would typically use at home when she’s sick. Hoping to help her get past this cold so that we can get the central line scheduled first of next week.
The longer we are here, the harder it is to remember what normal life looks like. Are we really going to get back home? The kids just assume that only one of us will be home at a time. I’m not sure they even remember who I am at work. They hired a temp guy to fill in for me while I was gone and he’s almost done, because he can’t work longer than six months!
We have had discussions about what’s left before we go home, but it just doesn’t even seem real. It’s hard to even remember what Aimee’s room looks like with her in it. I was home last week and went to get water. It tasted funny, cause it wasn’t the hospital water. We bought a water filter three months ago to have at the hospital, because the water tasted so gross. Now home water taste weird. Rosa’s phone thinks she lives at the hospital and works at our house 😳. We’ve been here so long that we’ve built relationships in the hospital with many different staff members. One of the nurses got engaged during Christmas and was excited to tell us her story. We need to get home so that we can knit our family back together.
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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