I was able to meet with anesthesia first thing this morning. They were quite hesitant to allow us to schedule the central line placement before 4 weeks following the virus. We had a long chat and she agreed to compromise at us waiting 1 more week, as long as I understood and agreed to the risks. Now that we have that agreement, we are working on getting on the general surgery schedule for next week.
There was discussion of doing her bone infusion finally this week, but I asked to wait until after the line procedure. The infusion can cause flu like symptoms and increased seizures. We don’t want anything to mess with that line placement date!
I am over all of this. Just give me what I need to get my daughter home where she belongs. We need this to be done.
Aimee got attend part of the homeschool lesson today via facetime. ❤️
Oh my sweet friends. Today is the first time of reading your blog. I am in awe. Awe because I simply didn't know what all is involved in caring for precious Aimee. Awe because of the incredible love that comes out of so much challenge.
ReplyDeleteAll I can say is, I'm in. Whatever I can do to help, I'm there.
I dropped off a few meals this afternoon and once again, I was welcomed with so much joy. I'm falling in love with your precious family and I CANNOT WAIT to meet sweet Aimee!
Love to you all!❤