1.29.22 Trach Floor 96

Today Aimee finally had her bone infusion done! We wanted to have her first dose while inpatient as it can cause seizures, fevers, joint pain, ect. We hope that doing these infusions will help us to keep her from broken femurs in the future. 

Aimee also passed the dry circuit test today and is now on one of her home ventilators. Our checklist is getting very small now. Just a few more items, mostly having to do with orders and handing over care instructions to both the palliative/hospice nurse and the home health nursing company. We have a calm day to let Aimee recover from her bone infusion tomorrow and then will continue forward with the hope of going home on Wednesday morning. 

I am finishing up some watercolor thank you cards for a few of our favorite, most influential nurses, doctors, and support staff. I’m not sure in the real world that I will be able to continue painting, but I am grateful that I was able to have this positive focus during some dark days. The feelings from this past few months are still there to be felt. Bottled up for later. I just couldn’t allow them to surface and still function. Painting allowed me to let drips of feeling seep out here and there onto paper. Side perk, they brightened up Aimee’s room!







1 comment:

  1. What a calming way to release all the feelings, stress and anxieties of your time there. Your paintings are wonderful! Praying so hard that things stay on track to go home soon!!🙏🏻♥️

    ReplyDelete

We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)

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