1.25.22 Trach Floor 90

Just set up the bair hugger to warm up Aimee. Again mildly hypothermic, 94f. Not even sure what to make of this sudden temperature instability. She has had trouble with regulation when the environment changes (getting a fever in the summer days, ect), but this is happening while she has been snuggled up in bed in the same temperature controlled room all the time. Odd. 

I was able to speak with anesthesia today about Thursday’s line placement. We discussed the risks again. She agreed to write an approval note, but in the end it is the decision of Thursday’s anesthesiologist. 

While we are here, Aimee has twice a week TPN bloodwork. At home the team wants to move to once a week. Hospice can do every other week, so we will need to bring her down on the opposite weeks. Thankfully, if she can remain stable for a month or two, they will consider allowing every 2 week bloodwork. 

In the discussions with our attending, they have agreed for this time to treat more as we would at home. We have asked that they not chase every little symptom, but watch and wait for things to develop. Today, Aimee had bloody trach secretions. They were able to put this new agreement to the test by sitting on their hands for today to see if it resolved or turned into an issue. So far it seems to be resolving.