1.24.22 Trach Floor 89

Busy day of planning and discussions. A lot of scheduling. Despite the low temperatures, the team is really hoping to proceed with her placement on Thursday. I finally was able to have a conversation with IR who will be placing the line. There had been miscommunication about the process and we still have to get anesthesia on board. I don’t get to meet with them until Wednesday or even Thursday morning unfortunately. Really praying that nothing delays this procedure. 

If all goes well, we have lots of things to accomplish between now and discharge. Several training sessions on Thursday, Friday, Tuesday, and Wednesday. Aimee needs to have 5 days on her home ventilator before we go. We also still need to do her bone infusion, hopefully on Monday. If this all goes to plan, we hope to be discharged on Wednesday afternoon and admitted to the hospice care program through providence that evening at home. 

Aimee continues to have some temperature instability. There were also more changes made to her vent settings today as they try to optimize her numbers before we go. More bloodwork to do, more orders to have written. 

2 comments:

  1. ED
    I can only imagine how stressful and tiring this can be on everyone as you navigate the best care for your beautiful Aimee.

    Can you play the song "Take me in" (to the Holy of Holies) and pray with me in agreement for her complete healing...?

    I played this song as I prayed for her tonight too.

    https://youtu.be/8MMxoaQoNvU

    "Worship the LORD your God, and his blessing will be on your food and water. I will take away sickness from among you…" Exodus 23:25

    "But I will restore you to health and heal your wounds,’ declares the LORD" ~ Jeremiah 30:17

    Lord God we stand in your presence and ask, and believe and through you, we command this sickness be gone in your mighty name.

    We speak life and hope and eternal refreshimg of Aimee's body, heart mind, and soul.

    Lord we give glory to how precious life is as you have revealed to us through this precious daughter of yours.

    We pray you would awake her, strengthen her to one day streach her arms upward in praise of your glory.

    Jesus, Jesus, Jesus, you alone are the vine to which we put all praise and hope for Aimee.

    We pray for blessing, as your word says, "in unity God commands a blessing". Tonight that blessing we ask is healing your daughter Aimee completely.

    In Jesus name, we agree and live only for you Lord to be glorified.

    Amen and peace to all...

    ReplyDelete

We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)

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