12.20.21 Trach Floor 54

Fairly quiet for a Monday actually. I talked with a couple of specialists after discussions at rounds, but for the most part everyone is waiting to make changes or decisions until Aimee recovers from the trachea infection. She really improved today though. The antibiotic is effective and she actually gave me a little smirk this evening when we put her back in bed. Most of the day she was grouchy, but much prefer the feistiness to the lethargy of the past week. I think we are back on the upswing. A few more days of extra treatments and meds. Hopefully by Christmas Eve she will be feeling festive.
 In great news, last nights TPN labs were practically perfect. We are trying to convince to consulting nutritionist who will help our GI doctor with her care at home that we do not need to come down weekly to clinic for labs and weight. Typically intestinal failure kids are brought in for their line dressing changes, those blood draws, and a weight check weekly. Since our goals with Aimee are different, we are working to convince the team to let us come in every other week or even monthly. The inpatient nutritionist was showing me today about measuring her upper arm for a better weight status that we can easily do at home and helping us argue the point.