12.27.21 Trach Floor 61

This may not be a productive week. :/ We had to cancel our last vent class today due to the weather. Have not yet been able to speak with general surgery about the central line. One productive item, we did get a meeting scheduled for Wednesday with Urology and Medically Complex Care. Oh, alright, we also were able to get her PICC lumens treated for drawing labs. So I guess a bit of progress. 

Aside from the agonizing lack of progress, we are starting to feel hopeful enough to attempt to plan how we will need to adjust our home life going forward. As we have mentioned before, coming into this stay we were dragging. It was not sustainable how we were trying to manage those last couple of weeks. We had planned on a day with nothing extra. A day as restful as it can be with 5 kids. ‘Just manage to keep everyone alive Saturday’ became a little too true and turned into taking Aimee to the ER. 

So, the problem is, if we were just making it before, we now have added to the load. Hopefully, possibly, we will be able to hire some more nursing help when we get home. We are praying for 1 or 2 night nurses that are trust-worthy and kind and teachable. Aside from that help, some of our processes and set up will have to change. We will have to be more careful to avoid infections in her central line and in her airway. We will have to adjust our ways of moving her around, cause she is heavier and also has even more fragile bones than we realized. 

All to say, the we are beginning to try picturing in our heads how this will work. It is a relief to be able to occasionally lift up our gaze from this hospital room to home. To consider the future. To hope that we can work so hard and have such good protocol in place that we rarely need to come stay here on the trach vent floor.