We managed to checked thing off of our list despite me feeling crummy. Our progress today involved a meeting with Urology and MCC and our medical resident. It went so well! I was really nervous going into it, especially since they were 50 minutes late. I was honestly feeling pretty disrespected, particularly after the way we had been treated in our previous encounters with Urology. Yet, we were able to agree on a plan to use for the next 3 months. We hope to have Aimee at home, stable and improving for that time. We will follow up with this same Urologist after that time and she will help us decide where to go from there based on its success.
Part of the problem going forward is that any fever or hypothermia requires a hospital stay to rule out a blood infection from the central line. A simple UTI could end us up right back here. We would like to avoid even a tiny UTI that may potential cause temperature changes. Sadly, that means we also will have to continue to be very careful about any sickness too. We desperately want to keep Aimee home as much as we possibly can.
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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