12.18.21 Trach Floor 52

Turns out Aimee has tracheitis, which is an infection in her trachea. Good to have an answer to why she hasn’t been feeling well. She did start having a temperature this morning and had several labs and samples taken. She was started on an IV antibiotic. So far no evidence of other infections or viruses. 

Unfortunately, Aimee was moved rooms late in the day. It isn’t the end of the world, but it was annoying to have to undecorate our room that we lived in for almost 2 months. Also, we will have to start over with building nurse relationships, which is so challenging. They moved her to the actual area that is only for vent patients. The good thing is that we should have more consistent nurses, but we have to have all new ones. Honestly, we rarely had consistency anyways. 

We are both here together for the night, but feeling pretty sad and grumpy. It is hard to be heading into the week of Christmas and to not be home to prepare for it. Normally we would be savoring the view of a lit tree, stockings in a row, and a cozy fire. Normally we would be reading christmas picture books and doing advent activities. We do our best to be positive and present with the kids during our times at home, but this is really tough on all of us. Our hearts are split. We need to be here with Aimee for many medical reasons and also because she is our child who should not have to be alone in a hospital. Yet, we also want to be home counting down the days to a celebration. There is no satisfactory answer, except to get Aimee home so that our hearts can be whole again.