7.31.21 Inpatient 34

Riding a rollercoaster over here. Today is an awesome day. Aimee has been awake most of the day at her normal energy level! She got her hair washed finally and I was able to get her weighted blanket and quilt washed. That was such a relief, because with how much time she has been relient on the bipap, we have had a more difficult time with those basic cares.

Her temperature came back up through the night and is now stable. We have no idea why it went so ridiculously low, but... I’m not going to keep chasing it. Today is good. 

No change in her output. Her Attending Doctor and I discussed the GI plan to maybe try increasing her medication again, even though technically she is at the max dose for her weight. Today is our first day completely switched to the lower density formula, so if we don’t see improvement by the morning, we will probably move to an added dose. We are close... just have to get all the way there. 

Aimee and Louisa were so sweet on facetime tonight. The screenshots never turn out sadly. Louisa was kissing the screen and saying “sissy”. Aimee has the biggest grin and was responding verbally.