Aimee had so much fun up in her chair last night watching ‘Sing’. Her belly laughs are so contagious, even the nurses were laughing.
Today is a big day. We are trying to go without adding any IV fluids beyond the little 5 mls an hour to keep the line going. We are hopeful to be able to add that small fluid increase through her j-tube at home. We need to see how relient she is on the extra fluids, if she is close enough to not be dehydrated without them. We are getting close with her output numbers, within 200mls of goal. We think she may still need more fiber added, but it is starting to cause feeding pump issues at the current rates and clogging the j-tube is a big ordeal that everyone wants to avoid.
So... here we are tracking inputs and outputs, giving meds, repositioning, cathing, emptying the ostomy, changing bandages, taking vitals... doing all the things we do at home, but not able to be home.
It feels like this will never end. So discouraging. We have been here 29 days in the past 7 weeks.
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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