All that to say the amount of fluids that they are replacing has been adjusted and we have farther to go than we even realized. Tonight we add the new medication on top of the supplement she has already been given. She has to be on that dose for 48 hours to see if it is effective, if it is not there is plenty of room to increase it. We are praying that this is the answer, that her output decreases significantly so that we can bring her home. We are desperate to be all together at home again. And so so weary.
7.13.21 Inpatient 16
While I went home today to milk, harvest garlic, and shower, Ed met with the GI team again. Apparently Aimee’s target ostomy output should actually be 400-500mls instead of 800-900 like we thought. This whole time since her ostomy surgery she has been losing twice as much liquids as she should be, but then after spine surgery she was losing 4-5x the amount that she should (1600-1800mls). Poor Aimee, even here in the hospital she has not been getting enough fluids! :( No wonder she has been exhausted and struggling.
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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Praying for all of you.
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