We are halfway through the formula transition and thankfully she has shown no added discomfort. Still not sure if it is working for the goal of lowering her ostomy output, but time will tell.
7.29.21 Inpatient 32
Holding the course today. I spoke with Pulmonary this afternoon and given that we are seeing some improvement in energy levels and time off of bipap (today she has only been off for 2 hours, but I am hoping to clock another 1-2 more), they would like to avoid doing a more invasive procedure of a sedated scope for now. The chest x-ray this morning showed no improvement in her right lower lobe. We will continue with the added breathing treatments and re-evaluate in a few days. As we see her energy return, our biggest remaining pulmonary concern is the profound desats. Today she has had two episodes with oxygen saturations down 20’s-40’s, turning gray. It is quite scary.
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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