We did have a care conference today. We tossed around a few ideas with the goal of getting Aimee home. We are making a few tweaks and hoping she will show us that she can stay hydrated with them. We will try to adjust her fluid intake a bit and reduce her IV replacement. She has made some progress, we hope enough. We are also working with insurance, home care, pulmonary, and medically complex care to get a battery operated ventilator. We cannot get a trilogy as they are currently all recalled, but we will get something similar. If those two goals can be met, we will take her home. We are hoping for next week. 🤞 hoping and praying.
Excuse the blurry photo, but I am so grateful to see all my boys and my littlest girl throughout the day. It makes me smile.
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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