7.14.21 Inpatient 17

Hello friends, I don’t have anything exciting to share today. It is Ed’s birthday, but it has honestly been a really tough day for us emotionally. We are quite drained. Hopefully soon we can have “pretend Father’s Day”, as Elliot calls our planned make-up holiday, and a birthday cake too. 💛 He deserves to be celebrated. And to get sleep. 

So far the new medication has not helped. We are already going up on the dose this afternoon. Aimee’s GI specialist just happened to walk through our rounds on her way somewhere else and stayed for a minute to made adjustments to the plan. That is great, because she most likely saved us at least a day of time waiting for the first dose to work. Her words were that we can’t do the normal for Aimee, we have to “throw the kitchen sink at her”. So here we are at least tossing a single basin. 

Only other news is that we had a set of spinal x-rays done this afternoon for ortho, since we will still be inpatient tomorrow for our post-op. It is a nightmare set of x-rays for Aimee to do and frustrating to work with radiology. They are not good at accommodations. Thankfully Ed and I were both able to be here for the process.