7.8.21 Inpatient 10

A day of highs and lows. We requested more fluids as Aimee was showing a few signs of mild dehydration despite IV fluid replacements for her ostomy output. She got a larger bolus this morning. Ostomy output is down a bit. Farrell is bloody again. We were feeling a discouraged as the doctors told us at rounds that there is nothing that we can do, except be patient. 

And then! What a relief this afternoon! Aimee’s own GI specialist who has worked with her for years and years walked in the door. She listened and heard what we were concerned about. She said that Aimee doesn’t fit into the typical box and we need to assume at this point that her spine surgery affected her gut just like it did last time. Finally someone to listen to us who trusts us and who we trust! Yes, this is not a virus! We needed an actual game plan and now we have one. More med tweaks and adding a supplement with more changes in the wings if these aren’t successful. I am practically giddy with relief to have someone who knows Aimee come in to review her care. Concerns that we brought up with the consulting GI the first days we were here were brushed off. And now they have been acknowledged and respected! Such a good feeling. 

Here is to progress for tomorrow!