Aimee has slept the day away. No profound desats.
Unfortunately, her medical team and the current GI on rotation did not feel comfortable going up on her med dose more before re-discussing it with her specialist. So, we wait. Today we increased her calories a little bit, which has caused some choking and discomfort. Otherwise, no news for tonight.
I have to admit, this feels unbearable keeping her here. Yet, we must continue forward hoping for up and up, stronger and stronger.
Hugs and prayers
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