The Attending started mentioning this morning that we may need to consider switching formula from Liquid Hope Peptides to an elemental formula. She is discussing it with GI. My heart sank hearing those words. Hopefully we don’t even get to the point of having that conversation. It would be so sad to put her on that. It hurts to even think of it in the plan. She has done so well on real food for many years. We switched to a peptide version that is still real food last year (considered semi-elemental). I am praying that either this triple dose of today’s supplement or tomorrow’s medication attempt work so that the question of a formula change stays off of the table.
We met with the wound care specialist again today about a couple small spots that are draining on her spine incision. We got a few more wound dressing products to hopefully help. At this point, Aimee’s post op appt and x-rays are on Thursday, which will be 1 month exactly after surgery.
In neat news, one of our nurses had the idea of using a syringe pump (often used in the NICU) for her meds. We spend a couple of hours each day giving meds and this pump could do the pushing for us over that long timeframe. It works great, but the pump costs $600! I plan to see if I can find a doctor to write a prescription for it and see if insurance will cover it. 🤞
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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