The CPT combined with saline, cough assist, and extra inhalers, plus some new better fitting masks has finally equaled more energy for this amazing Aimee. Tomorrow we will have new bloodwork and a new chest x-ray, but 6 hours off of bipap today, alert and engaged, has been an incredible improvement over where she has been this past week. I feel such relief seeing her smile and hearing her talk again.
Today we started the transition to a lower density formula. We hope it will be the final step
to decreasing her output enough that she can manage hydration without any IV fluids. In less than two weeks my family is coming for our annual family camp at our place. We are now feeling hopeful that Aimee will be stable enough to be home. This is what I am praying, that she will be home and we can all be together with family.
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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