7.11.22 Inpatient 13

If anyone is tracking along with all the new movies Aimee is enjoying, last night she watched the new Aladin movie and loved it. Have any suggestions for other movies she would love? We are trying to get her to spend a couple of hours up in her chair each evening and a movie that makes her laugh sure makes that process more rewarding for all. She particularly loves musicals. 

Medically, we are still here. Still hoping to leave in 2 more days. One of these times that I say that it will be true. GI does not feel comfortable sending her home until we can get her ostomy output back to normal. If we don’t, we will have to keep coming back for fluids. We have been adding supplements and changing medications, some of which have helped, some made it worse, and some of which have added secondary issues like clogging her feeding tube. Last night we switched to trying a new version of a supplement that is a fiber with prebiotics added to it. It is more broken down than typical fiber supplements to hopefully not clog the tube. So far it hasn’t decreased her output at all. We doubled her dose this afternoon. Tomorrow we will triple it if it still doesn’t work. After that we have to add another medication. 

It is such a complex process of tinkering where we can only make one small adjustment each day and then stand back to watch if it works. In good news, all of us including her nurses, doctors, residents, and interns, are getting a really good education in fluid management.