Last night (this morning?) we met 3 different teams all trying to decide who should admit us. We first met with the PICU nurse practitioner who had actually overseen Aimee’s care post spinal surgery. Together we agreed that Aimee wouldn’t need to be admitted to the PICU currently. Then we met with the surgery team. Then the medical team. Apparently it was a difficult decision that took hours. :/ I kind of understand as it took Ed and I a few minutes to decide who to call yesterday to discuss our concerns. It’s a bit of a complicated conundrum. We finally ended up in the medical unit, though Aimee’s orthopedic surgeon has been in today already to check in with us.
At this point we are working to make sure that Aimee is fully hydrated and not in pain. Her heart rate has come down. She is asleep on her bipap with oxygen with a heart rate of 92. Much improved. She has had and continues to have excessive amounts of fluids put in. Once she is fully hydrated, we are going to work with GI on how to keep her there with possible medication changes (maybe some decreases even) and as much fluid increase as we can. It is not simple and we don’t want to leave until we feel confident that we have all the tools we need as well as good perimeters for when she just needs to come back here for fluids. Not being able to give bolus enteral feeds at home makes this quite a real possibility to watch out for going forward.
Man we are shaky and tired. Hoping to maybe take turns getting some naps in this afternoon. Zzzzz
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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