8.6.21 Inpatient 40

Infection cultures came back this morning and it appears that Aimee has a significant kidney infection not a bladder infection. The antibiotics have been shifted from a general first line type to a more tailored prescription and we hope to see the hypothermia stop tonight/tomorrow after the first few doses. Hopefully her heart rate will come back down as well. 

Ed has been keeping really busy between the different departments coordinating Aimee’s care. The Medically Complex Care team is working with us to write a new detailed care plan for Aimee and working with Pulmonary to get us a new respiratory plan for at home, including a some new equipment to give Chest Percussion Therapy and inline Bipap Saline/inhaler doses. Rehab is going to help us oversee the new medications for pain and muscle spasms. 

He has also been talking with Palliative care about at home services either on a semi-monthly basis or possibly even a semi-weekly basis hospice style care. At least for the next few months we are accepting their offer to come provide service in our home on a regular basis. 

Throwback photo to Ed caring for Aimee after her peg surgery 10 years ago today. 😍 Always there to defend his girls.