We brought Aimee home in the middle of our annual family camp. When we pulled in at home, she was surrounded by family. Her cousins and siblings were chanting “Aimee! Aimee! Aimee!”. It was so overwhelming and so beautiful.
When we put her back in her bed for the first time she immediately began looking back and forth with a great big smile on her face. So happy being home. It is wonderful to see her light up. We brought her outside to be with the family in the evening and she smiled and laughed for hours. It was like taking her from a nightmare to her dream come true. So precious and priceless she is.
We did have the most ostomy output yesterday she has had in weeks. Please pray with us that it immediately settles so that she remains hydrated. In great news, she was awake and off of bipap for 8 hours yesterday!
Is it not a concern to bring her home surrounded by a lot of people who have not been vaccinated/not been vaccinated for COVID? Does that not put Aimee at great risk?
ReplyDeleteHello, Thanks for your concern. It is a calculated risk. We, along with her Palliative care team, Medically Complex Care team, Pulmonologist, ect, agree that it is worth the risks to be in her happiest place having relationship with her family.
DeleteSo happy for you all! It’s amazing how God created the mind and body connection and so thankful she can be home where she feels happiest and you all can be reunited as a family! Keeping you in our thoughts and prayers!
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