Energy wise she has really perked up. The PICC line nutrition is making a huge difference. She is smiling and energetic.
However, she did have to make it through 30 mls of contrast for the GI test today. It went okay. We gave her IV anti-nausea meds an hour ahead. They took her down and brought her back an hour later, because the contrast hadn’t moved at all by that time. They had a mobile x-ray come by every half an hour and by 2.5 hours it had started to move out of her stomach. They kept tracking it and found that there was no obstruction or issue in her small intestines. We had thought this was not the problem, but wanted to make sure. It seems that the issue is the stomach itself not working properly. GI decided to start her on a small dose of motility meds tonight. Tomorrow we will test this small dose by giving her a tiny bit of pedialyte.
She did spend a couple hours this afternoon vomiting up the rest of the contrast that was in her stomach. We did get her more anti-nausea meds, but right at that point her wound vac got a blockage. They came in and attempted to just change the tubing, but it was unsuccessful. They had to do a whole dressing change, which was definitely painful for Aimee.
Her amazing nurse, whom we have had several times now, washed Aimee’s hair. Very much needed, though another stresser for Aimee. And now she is doing her hour long cecostomy flush.
Poor girl is worn out! Hoping for a good rest for her tonight before the big challenge of attempting some fluids into her stomach.
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