12.23.17 Home for Christmas

We did it. All the t’s were crossed, the paperwork provided, and the discharge okay’d. We brought our girl home for Christmas this afternoon. 

We are numb exhausted. Unfortunately, we also came home to a house with the flu, so an added challenge to the transition. We’re so glad to be here and so excited to sleep in our own bed and SO thrilled to be with our boys. We made it through that horribly long battle... but this journey is not over yet. 

Aimee had vomited again one time last night before the g/j change. She has again tonight at home as well. We are trying to determine how much we need to have her stomach venting and how to manage continuous feeding with such a high med volume. We are hoping that the vomiting episodes are not her new norm as they include desating, choking, and frantic airway clearing. 

We are also learning how to manage continuous cords around her all the time, particularly the wound VAC, as it is not able to be disconnected at all. She now has a minimum of 5 cords/tubes attached to her all the time at home. Not much compared to the hospital, but much more than we’re used to having at home. Basically, please continue to pray for us and for Aimee. Pray that this sickness does not get to Aimee particularly. 

I have so many thank yous to say and pictures to share. For now, I’ll just give one of each. 

Thank you for journeying with us in your different way and ensuring we were not alone.

Aimee and Walter smiling and cooing during our last inpatient night.

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