12.27.17 Pictures and Update

I have pictures to share from our long hospital stay, but a quick update first. Aimee has definitely perked up energy wise since we have been home. She isn’t at her normal level, but she is not sleeping all day either. She has even had some happy periods of playfulness. 

GI wise, no changes. She is still having gagging/vomiting episodes in the evenings. She is probably 3 hours short on fluids. We are hoping that an increase in the motility medication will allow us to increase her rates a tiny bit so that she isn’t behind. We are trying to figure out venting the stomach and refeeding contents over a certain volume into her intestines. It is a bit weird, but it is the safer option as vomiting is an aspiration risk and losing those contents creates an electrolyte inbalance. 

Wound wise, she had a dressing change on Monday and will have one on Thursday. She is making phenomenal progress. It is filling in well, though it is pretty lumpy and will probably be an ugly scar. No back modeling in Aimee’s future! As long as it heals completely, we don’t care how it looks honestly.  

Thankfully, Aimee has not yet shown signs of catching sickness from the house. We are praying she continues to remain sickness free! Our Christmas has been unusual and less than picture perfect, but we have been so blessed by friends and family with gifts and support. It is sad to not have that advent and peaceful Christmas time, but we are so grateful to be home recovering! Thank you to so many of you. We have been overwhelmingly blessed by your loving gifts!

A few photos from Aimee’s hospital stay:

Getting off of bipap after surgery. 

Aimee loved borrowing the hospital’s iPad. She is a big fan of watching shows apparently!

Walter growing up at the hospital after being born at home. Such an ironic chain of events for his beginning. 


Aimee’s therapy baby ;)


Daddy defended his girl from anything that might cause unnecessary discomfort.

Added jewelry, a PICC line and a NJ tube.

First experience with IV nutrition/TPN. Made a huge difference in Aimee’s wound healing!


Finally decided to bring our own bath/toilet chair, since there was not a good option at the hospital for us. 

The big boys bringing in Sissy’s chairs.

Felt so good to finally get a shower for her! 

Aimee was pleased to venture out of her room for Christmas Carols with Ciara. 

First smiles.


Thankful for the helpers and visitors we had. 

Aimee’s cousins made decorations for her room! 

Long nights require napping between doctors and nurses popping in during the day.

So good to have time with our boys!


Walter and Aimee could tell we were getting excitedly hopeful to go home. 


We did it. 25 days later we brought our girl home!


She came back with a lot of stuff!

So grateful to be home!