Aimee had a really tough day and evening. Lots of gagging, choking, crying, vomiting, desating. She is calming down now after we were able to get her some IV pain medications and her nightly sedative. We had to push back her pain meds in the evening, because they were originally by g-tube and she is having difficulty taking in even her important meds.
No progress forward today. If anything we feel farther back. Hoping that with the start of the work week tomorrow and the return of the primary doctors, we will get some real answers to what is happening with Aimee’s gut.
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