12.6.17 Wound VAC15

A fairly calm day for Aimee. She slept most of the time and just woke up this evening quite emotional. We had an upper GI scheduled, but there was some miscommunication between the new team and the radiologist. They had not communicated that Aimee does not eat by mouth, so it is essentially a middle GI study that we need. It may take hours depending on how impaired her motility is currently. She is again scheduled for the study, but now tomorrow. 

We had our first rounds with the medical team this morning. It will be somewhat challenging the next few days as we re-establish relationship. At this point they don’t look to us as the experts or value our input very highly. We’ll get there. Thankfully for now we get to stay on the surgical floor with the nurses that we have come to know and begun to trust.

Aimee has been worked up to full calories through the central line IV. There is quite a routine around this line due to the increased risks. Daily she is weighed, cleaned with surgical wipes, and bed is changed to reduce infection risks. Currently she is on nightly blood draws to allow them to tweak the TPN according to her nutrient levels. It is fascinating to learn about a new process and wonderful to be getting her calories, but also a bit intimidating and not a very long term solution.