2.13.22 Onward

We are making our way. Each day forward, the routine is getting more practiced. It is a relentless routine in that it is always. Every day around the clock. I’m not sure I would ever call it easy, but it is happening. And… I never, ever want to take her back if I can at all help it. It is SO SO good to be home. So good for her, so good for us, so good for the other kids. It is a lot and it is tiring, but look at the rewards in the pictures from this week at home: relationship, joy, interaction, consistent care, comfort, familiarity, sunshine, peace, positive touch. So much to be grateful for in this. 

(All three of us wearing the same lipstick at Louisa’s insistence)

(Sitting in the fresh air and sunshine with Nana)

(Watching a movie and laughing with brothers)

(Learning to play her new toy)

(Louisa wanting to match Aimee)

(Giggling during respiratory treatments)

(Louisa loves helping take care of Aimee)

This is worth all the work. All the sacrifice. 

Tomorrow we are taking another step forward. Ed is returning to work. Our delayed Christmas break is ending, so the kids and I are returning to homeschool too. I’m not certain how it will work. Honestly, I am nervous and don’t want tomorrow to come. Please pray that we would all stay healthy and be able to balance. We have a plan for this week. We have the hospice team in person and the medical team virtually to support us. We plan to cut out a lot of extras, to cut a lot of corners, to focus on the key priorities for this season: 

-staying home, staying healthy

-savoring time together

-getting enough rest to safely do the above