2.1.22 Trach Floor 99

This is our last night here at the hospital. We spent the evening packing boxes of supplies. It all feels pretty complicated and there is much to prepare. We are the going home with the unprecedented repolgyl/gastric suction, the first patient to be discharged with a new trach that has this new style ventilator, and we are taking home a central line with TPN. For us it is a lot of adjustment. 

We were able to do the sterile central line dressing change today ourselves, which felt like a big step and actually helped me to feel much more comfortable with it. Tomorrow morning the TPN supply company will meet us here at the hospital to switch Aimee over from the hospital IV pump to the home ones. She will also help us to do the new daily routine: draw the vitamins and medication from glass vials and add them to the new TPN bags, spike and prime the TPN and lipids bags. We will be taking the first week’s worth home. Then the bags, vials, and supplies will be delivered to us weekly at home. We will also be putting on the new cap, bifuse, and then heparin locking the lumen so that we can start the new bags when we get home. There is much to learn! 

Ed picked up most of our 27 prescriptions from the pharmacy tonight. A few should hopefully be ready in the morning. We have to discharge in time to be admitted at home to carousel hospice/palliative in the afternoon. 

One more night on a hospital bench. 

One more night.