9.27.17 Successes

Finally some good news to share. Aimee was able to take in her full fluid goal and her low food intake goal yesterday without pain! Granted, we did keep her on pain meds all day, but this is still really good progress. Today we will attempt a slight increase in calories. 

Also, we were able to use the c-tube 2 times for large bolus type enimas on Monday and Tuesday. It went really well for a starting point and Aimee showed no significant distress throughout the 60+ minute process. It hasn't resolved the issues we were having yet, but we are feeling really hopeful at this point. 

Tomorrow we have a big day of pre-op appointments for the spine surgery that is 3 weeks away. Praying that Aimee is able to tolerate being in her wheelchair for the 6 or so hours that she will need to be. We haven't had her spend much time in it (beyond the drive home from the hospital) due to the extra pressure it puts on her belly. 

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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)

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