In other news, we have made some progress with the insurance company who denied the supplies for the c-tube. Hopefully by the time we are ready to use it, we will have it fully sorted and supplies will be on their way.
9.22.17 Cecostomy15
A peaceful (as it can be inpatient) night. Aimee is finally her calm, responsive self today and we have a plan for how to get her home. We are still seeing the same pattern of distress with food, though not as dramatically as before. We are not going to be able to get her on as many calories as she needs for several days probably, so we fully switched our focus. We are aiming for staying hydrated instead of nourished for now. We are attempting to give round the clock water with little boluses of food throughout today. If we have success with this plan, we won't be reliant on IV fluids and we hope to be heading home to finish up this gut recovery. The doctors had hoped to only have Aimee stay for 1-2 nights, but with her neurogenic bowel condition, everything just works slower.
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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