9.23.17 Home

Sigh. We are so grateful to have Aimee home. She slept really deeply, much better than she was sleeping at the hospital. Her heartrate dropped down into the 50's (which is normal for her when asleep) last night. Inpatient I don't think it went below 90 ever. She is still showing distress with food with higher heartrates, like she has when in pain. These have been 140-160, rather than her normal awake around 100, but not that 190 that we were seeing during pain panics. We are sticking with a similar fluid schedule for Aimee for now and watching out for distress. It seems like she really needs this next 3 weeks to recover before the next round. We need it too honestly. I am nauseously exhausted and Ed really needs rest too. 

We're praying for Aimee's continued progress and that she would be able to take more calories without pain. We are praying for protection of her health over these next weeks so that she will be strong and prepared for the spine surgery. We are also praying for baby DeVoe to patiently wait to arrive until his due date in 6 weeks. 

For some reason I was not able to post photos with my updates from the hospital. Here are a few snapshots from this week:

Before heading to the hospital Monday morning

Aimee was nervous in the waiting room


She was very entertained by this fun gown that blew warm air on her though. 


Daddy praying for a smooth as can be procedure


Pre-surgery belly

Welcoming Aimee back when she started to wake up afterwards


Tuesday Aimee felt great before we tried any feeding and before her gut woke up

Then pain started


We tried our best to comfort and help her


Passing a wheelchair pain test late Friday night to decide she could make it home

Too tired after all her meds to be excited about going home 

Belly post op day 6 with a new c-tube