Another issue we are currently having is with the insurance company not wanting to pay for the supplies for this new tube since some of them are the same type of supplies used for the g-tube. Hoping I can get that sorted out in the morning. One of my least favorite tasks is dealing with the triangle of insurance companies, homecare companies, and the doctor's staff.
9.21.17 Cecostomy 14
Overall good progress today. We are trying to get Aimee to take in enough fluids to wean her off of IV. It may take us some time to get back to her typical schedule, which we can deal with at home. For now, even a continous feeding would be fine, if we can get Aimee to tolerate that much fluid. We are watching her heartrate, hoping it will go down so that we can try to add more fluid at a higher rate. We are moving in the right direction, but need to get farther to make it home.
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We love to read your comments and encouragements! Messages to Aimee are always welcome too. I will definitely read them to her. :)
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