5.26.21 Ileostomy Day 6

Lots of great news and progress. One scary event. 

Aimee is off of IV fluids and as of 5 minutes ago is up to her goal feeds. This is about 20 mls/hour less than she was receiving before at home, but it may be all she needs to stay hydrated now.

She is nearly off of pain meds, though complaining this morning, so we will do just a dose of tylenol. 

2 days ago the surgeon said that once we got to goal feeds, she wanted 24 hours to see ostomy output to determine if more fluids were needed. I am really hopeful that she might let us just track this at home and release us today. Hoping to find out soon! 

We did have one really scary event yesterday. Lately when we take Aimee off of bipap she doesn’t start breathing on her own very easily. Her lips turn blue and we have to use her cough assist to force air into her lungs. Well, yesterday was a version of this, except she lost all color and turned gray in her face and ears. She completely stopped breathing. Her oxygen was in the teens. It was terrible. We were really shaken for the rest of the evening. Thankfully we were here and able to come up with a plan for next time. The RT got us an oxygen line to bleed into her cough assist, which will inflate her lungs and push in oxygen at the same time. 

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